Saturday, May 10, 2014

Best Laid Plans


Best Laid Plans

May, 1 2014

After much preparation I was ready and eager to leave Kayunga and head up to the farm, finally! The initial shopping in Kampala and meetings were completed. I now had to pick up the orders from Joint Medical Stores, Nice House of Plastics, pick up Terence our new accountant and administrator for Emmanuel clinic, meet Richard, buy a few items for Rogers, a sewing machine and off we go. After much thought and a few negotiations with AIDSpirit it was determined best I use their bus for the trip as I had a lot of items to bring to the farm. Included with my 4 tubs were the printer and supplies for the clinic, books,  mosquito nets, medicines, water test kits, and 1000 cups for the school outreach and water cleanliness project we implemented a few years ago with bio sand water filters, hygiene, hand washing and sanitation. There was only 3 people and the driver going, however it was going to be a hassle for me to get a vehicle from Kayunga and then another one from Kampala. AIDSpirit would hire a van for them for the day. All was set and I was ready to go! We were a little late starting off as Charles had some things to finish up in Kayunga, eventually off we went. I heard from Richard an hour into the trip that he had arrived Kampala. We planned a meeting place and all was well. A few minutes later, I recieve another phone call and he tells me all is closed as it is a government holiday......labor day. Go figure. Joint medical stores and Nice house of plastics is closed. So now I have a bus enroute that is very expensive with little people and just my tubs printer and a few supplies. Now what to do. I could not see paying that large sum for fuel etc, so we juggled around and thought of a way to get all my tubs on public transportation which meant they would have to go on the roof. I talked with AIDSpirit and they graciously said they would bring my stuff up when they came in a few days...so I sent my stuff back on the bus with Charles to Kayunga and just kept my backpack and small suitcase. We then hired a small car to take the sewing machine to Grace and pick up Terence. Since this part of the trip was already costing over $100 I thought I should take the public bus so off we were headed to the bus park. Now Terence has a broken leg and is in a cast. I would also have to pay this driver. Out of the blue, I thought to ask him what it would take to drive us in this small car to the farm. He said he goes to Masindi every week to pick up people and would be glad to do it, has a car that makes the trip well and knows the road. I am so thankful for Ranae and her gift to me prior to leaving on the trip and remembered her telling me, if you get in a bind, don't struggle and take the public bus. Use this money. So, I did...and was so so thankful, I had that reserve. Now, I figured I would save it for later in the trip, not blow it all in one day early on...but it made it easier and i could make stops along he way to go to the toilet and buy fruits and vegetables, etc. We made it in record time, even before dark which was amazing. What is also amazing is that the Ugandans do not seem to have it on their radar when there is a public holiday!!! Lots of stores are open as in our country on holidays, but major businesses and the government are all closed similar to ours. I think as oblivious as I am to things at times, I would know it was a public holiday?!. So, the best laid plans....turned into..... when all else fails...go to plan B, C, D and all the way to Z if you have to!  And, I am digging deep within me for the grace and ease aspect of this day!  Thankfully, I only felt the panic and stress of the situation momentarily and moved on...to the bright side.  I am so looking forward to my first day on the farm!

Nadine

Friday, May 9, 2014

Sickle cell clinic


Sickle Cell Clinic

April 30, 2014

Ebony eyes, with yellow tinge slera are looking at me curiously and shyly from many a face with bony outlines of frontal bossing (enlarge frontal bones) and some with enlarged mandibles and puffy eyelids as they lined up on the bench awaiting the sickle cell clinic. I am reminded of my Kenny when he was younger, the characteristic features and complications of sickle cell plaguing him with severe hip pain. I still look at his eyes every time I see him and if the sclera is yellow I become the nagging mom...drink more water! Hydration is key to the prevention of sickle cell crisis. So, as these kids sit on the bench awaiting the doctors, I dole out cups of water and folic acid...and silently pray for their health and well being, remembering the health and blessings Kenny has recieved. It brings back many memories of my first trip in 2003 and Kenny's arrival to America in 2004 for his hip operations and healthcare!

100's of children born with sickle cell disease and their families look forward to this clinic every year. Villages far and wide are mobilized as Tender Mercies partners with the Sickle Cell Association of Uganda. Two doctors, nurses, social workers, counselors and educators come from Kampala each year to conduct this outreach for children and families who would have otherwise not had the opportunity for healthcare and education. In 2006, this sickle cell education began humbly with me and a few ugandans, then a combined team from the US with some medical providers and nurses and subsequently for the last few years, generously provided through a grant from the Sisters of Charity of Leavenworth Kansas via Sr. Mary V. It is a huge blessing and wonderful community outreach. Now that Tender Mercies has a nurse, the sickle cell association has agreed to train her and the opportunity is there for sickle cell children to come for care in this region with the doctor's back up. I am charge with helping set this up. I am truly humbled...and in awe...these children suffer so so much....

Nadine

Mwambu

And... there is Mwambu

Mwambu (who I had previously called Youwabu) runs out of the door exuberantly in his cockeyed gate running, with his cockeyed smile grinning from ear to ear, then literally jumps in my arms and hugs and hugs, grunting his few words....all happiness and joy. Ah...all hardship is erased and every last sacrifice is worth it...for this boy is happy, happy, happy! Mwambu is the boy who was sitting behind the bush eating dirt in Bugogge village a couple of years ago. He was so cachectic and malnourished he looked like concentration camp victim pictures or famine pictures. His temples were sunken, his bones protuding even in his face, knobby kneed and limping to even stand with a boda belly of worms likely and kwashikor syndrome from malnourishment, naked save for a ragged piece of cloth that draped over his head barely reaching his chest. He looked at the ground ashamed and sad. He did not speak, only jibberish. His mother was mentally ill and only spoke jibberish and died and few years back and his father was killed, run over by a car while he was walking along the side of the road. I could not get him out of my mind, therefore, after exhausting all options sent him to live and rehabilitate at Tender Trust orphanage in Kitgum we support with medical care. He lived there about a year and improved, but not after being so hungry and animal like he grabbed at a plate of food his first meal with the other children and spilled hot porridge all over his head, lip and chest and burned himself badly. This healed as did many other scars. He also had never used a toilet and had dumping syndrome until his stomach was able to get used to food. Once Tender Mercies building was built a year later we brought him down from Kitgum with the mission team in Jan 2013. Four days he was with us traveling by the bus to Kalongo and through Mbale to Jinja and finally to Kayunga. It was a long four days and he tried the team at times. Since at Tender Mercies he has flourished with the other kids. They have taught him some words, played with him and settled him in at night like all the other kids. He goes to day school which in the beginning was quite a disruption. He is mentally disabled it appears so it is unclear what he can learn with reading and writing. Overall he has learned how to live joyfully, always helping out and hugging and laughing and smiling! Gretchen had me buy some basket balls on one of my shopping trips to Kampala and I was duped. When it was pumped up fully it was oblong and bounced off kilter, but that did not matter to Mwambu..he and Rachel played ball and laughed for hours. 10 year old Rachel has taken Mwambu under her wing and even wants to teach him letters and numbers. So, I bought some marker erase books for his to try. Regular books he might tear up and these can be reused. I hope he likes them! Mwambu, yes you are a child of God and deserving of love just as any other child or person....you matter and you are beautiful both inside with your sweet sweet heart and outside even with the scars cockeyed gait and cockeyed smile.  We love you!

I am amazed at how great Charles and Jackie are taking care of the kids!!  They all look healthy and transformed from starving wild village children to well behaved nice loving kids!  This could not have happened without all of the dedication of AIDSpirit support and unconditional love!  A wonderful testimony to loving one child at a time...

Nadine

AIDSpirit USA sponsor 60 children

As many of you may recall, AIDspirit sponsors many children. It started with 5 kids that Kenny asked shyly to sponsor through AIDSpirit in partnership with his brothers organization, Tender Mercies, in 2007, seven years ago. The sponsorship has now grown to 60 children, buying land, building a building, water projects and hiring staff...and with that comes growing pains and Ugandan govt rules to follow and partner organizations and town councils to mesh all in a diverse culture so odd to us and different from ours at times. The learning curve for me is still steep and for new leaders even steeper. Yet when the kids jump for joy, look healthy and happy it is all worth it!! The AIDSpirit team of 4 was incredible and spent a lot of time interviewing the kids and meeting many, many people involved in their care. It was quickly apparent the learning and teaching and school system in Uganda is very different than in america! Some are struggling quite a bit. Including Rogers. I first met Rogers in 2006 when he was brought to me in an outdoor Bugogge village clinic (before there was even a Tender Mercies office), emaciated with wounds open to the bones and the most painful look in his eyes, begging for a piece of meat.  He was starving and sick with massive skin infections to the bone of his flexed and contracted limbs.  Most of you know the story....since all medical options in Uganda exhausted for treatment of his TB spine, deformity and restrictive lung problems, brought to America for a very special spine surgery at St. V's. Subsequently he has been denied access back to America for his medical check ups and has suffered severe decubitus ulcers from pressure wounds as he is unable to feel anything below the waist, had surgery, was bed ridden for months and struggling every day to maintain some semblence of dignity while he is back in a land foreign to him in many ways. After being taught in the american school system, he is mixed up with trying to learn the ugandan way as their words and pronunciations different in english and much of the ways of teaching very strange. Rogers is quite discouraged about his dilemma. The team worked with potential student teachers and tutors for the children falling behind. I bought books for Rogers, with the hopes he can keep his mind stimulated and spirits up and learn...

We pray for all of the sponsored children's education and sponsors as this is their hope for a life out of poverty....

Greetings in Uganda

Greetings in Uganda

The plane trip was uneventful and went very well. One of the
AIDSpirit tubs did not arrive so we had a long wait to sort that out and as good fortune would have it the customs people left and we sailed right through customs without even having to show papers etc. What a blessing!

Outside, there was Rogers to greet us! A huge surprise. Angie's sponsored child, Steven, was also there with of course, Charles of Tender Mercies. At last we settled into the guest house just fine, slept well and were off to Kampala to change money the next day and do some errands, like shop for printers and meet with Draco Drilling to discuss upcoming water projects,etc. Finally, we reached Jinja, to have dinner with sponsored Denis and Geoffrey and Kenny's brother, John, his wife Beth and son Kiah. It was dark and late but so so good to meet up with all. Approx 10:30 pm we arrived Kayunga and the hotel. The heat is intense and the bugs abundant, as we try to sleep, tossing and scratching and itching, wishing the fan would work and the pipes would stop dripping...but alas this is Uganda. Rogers and Steven were exhausted and taken to Tender Mercies to sleep with the other kids as they happily anticipated the bright white faces of AIDSpirit with all their love and smiles to appear the next day. Let the work begin....

Uganda Mission 2014 - Trip Number Twelve - Home away from Home

April 23, 2014 – Departure to Uganda
Home away from Home

Dear all,

Even though I am going over solo from Hope 2 One Life, and packed four tubs (instead of 22 and a full team as in the past), the process of getting ready is still overwhelming! One would think the airport situation in Billings would go without a glitch after 10 years and 12 trips but that was not the case once again. The airline agent even though she was great last trip gave me a problem about the extra tub and it flustered me quite a bit. I am allowed three tubs for medallion status and I pay for one extra, she tried to insist I pay for two and I madly tried to find the rules...wouldn't ya know it I usually carry them with me but assumed a smooth sail...so didn't have them. As Dan was lookiing for internet access, the AIDSpirit team showed up and she flippantly said I will just waive the one. They all had 3 tubs each on Tom's medallion status and one extra and she didn't give them a bit of hassle. Oh....just that little bit of stress after very little sleep for days prior to the trip, coupled with many extra hours of work prior to save up to pay the bills while I am gone is enough for me to ask..."Oh God...why.. why is it rarely easy....why do I put myself through this?"

That is when I always remind myself....I am simply following my life's calling and serving God's work... doing what i can to help just one small miniscule fraction of orphans and widows, impoverished families and children in a suffering world. I remember the angels that guard me front and back through the years and all the prayers that carry me through as I am simply the messenger. Thus, as soon as I get on the plane and sigh a huge relief, I settle in to the peace and calm of the 34 hour travel in great anticipation of the journey to come....muster up every bit of perseverance and energy and place my sights forward on the work to be done and hope to be restored. On faith alone, leaving Kenny and my american world behind as I head for my beloved Uganda...home away from home.....

I am grateful to all of you for the prayers that will carry me and the many who have made this trip possible! St. Vincent Healthcare Foundation for providing my travel grant for the plane ticket. Without their help, I would have to work 4 jobs instead of three to pay for the time I am missing work. I am grateful for the ST V WIC staff, providers and managers for keeping their promise of allowing me to travel for this work to Uganda twice a year even though it leaves gaps in the schedule. I am grateful for the H20 Board of directors in their great assistance with many things while I am gone and in providing the guidance and help while I am over in Uganda, especially as I tackle some difficult issues by myself. I am grateful to Ranae so much for helping me pack, if not for Ranae I would have been in panic mode daily. I am grateful to Dan for saving the day once again and getting me to the airport and through the check in process. I am grateful to the AIDSpirit team, Tom and Jean Jacques, Jeans sister Gretchen and Angie Osborne (famously known of the wife of Tom Osborne in Uganda, our water expert!) as we travel together and partner in some of the work. They will be in Kayunga for approx 11 days and on then visit the farm for 3 days before flying out May 6. I will be on my own and living as a Ugandan for 3 weeks following for a total of 5 weeks which likely will be packed with many many adventures and amazing counters. With grace and ease...I pray I will move through every challenge with grace and ease.

Nadine

Last Days in Uganda - December 2013 Blessings

 December 19, 2013

The last few days have been a whirlwind, and as I sit here in an overstuffed armchair, surrounded by christmas decorations and the smell of cinammon, I am already beginning to miss Uganda.... Wait, I'm still here! We are spending the last two nights of our trip at John and Beth Musagala's house in Jinja. John and Beth are a wonderful missionary couple who work for Hope in the Land Ministry, bringing clean water, heathcare, and the word of God to the people of Mayuge District, one of the poorest regions in Uganda. They are taking us around Jinja today on a "touristy" excursion to the Kitenda Falls, and to a craft market in town.

Tuesday was our last day at the farm, and we really had a blessed time. Nadine and I took a morning walk with Geoffrey to see little John, a boy with severe disabilities who is being supported by Far Reaching Ministries. He had a big smile on his face when we showed up, and it was amazing to see how joyful and Spirit-filled he is, even in the face of so many challenges. He reminds me of Tiny Tim from Charles Dickens' A Christmas Carol. After we walked back to the farm and had lunch, we had another training session for the VHTs, this time on maternal/child health and nutrition. As we trained them, many community members started to arrive, so we repeated the lessons a few times to ensure everyone understood. Judith, the new nurse at Emmanuel Clinic, gave an engaging and informative lecture on the importance of visiting the clinic for antenatal checkups.

We climbed the ladder to the water tank-the view of the entire farm was breath-taking. To view the school, Emmanuel Clinic, the tukels (huts we sleep in,) the Nook where beyond delicious meals were served and where many conversations took place, the diel ott (goat house) and the fertile fields. The irrigation drip lines coil like black snakes in the soil-symbolizing the potential for dry season production and business opportunity for the villagers. It is bittersweet to leave the Utopia of Canaan Farm. I say good-bye to the Cockatieu that sang to me above my shower and to the lizards that scampered about in our living thicket roof. I say a lingering farewell to the Queen of the Night tree outside our tukel that blessed us with its amazing aroma where its blossoms open only in the evening to bless us. The hardest is to say good to our gracious hosts Richard & Susan Angoma and their 3-year-old daughter Abby. To be so openly welcomed in their home and hearts is humbling. Richard was our chaperone, translator & negotiator with others for us at H2O Life. We our forever indebted to them and I count them among my best of friends. Wishing God's Blessings on their special family and all the amazing workers/friends at Canaan Farm. Heather R.

It is always a bittersweet depature from Uganda back to the US for me, however so happy to see Kenny and kitty soon!  I will be working all through Christmas and New Years and the adjustment is harder going back it seems.  Yet, the teamwork on this trip is very satisfying and with one step closer the the dream of the end of poverty for a small remote region.  God is good and I am grateful for all of the service and sacrifice of the team, Tom Osborne, Mariel and Heather Rieland.  May you be richly blessed with treasures in heaven.  Thank you with all my heart!  Thank you all at home for the prayers that carry us safely and wisely.

In deep gratitude,  

Nadine