Sickle cell clinic

Sickle Cell Clinic

April 30, 2014

Ebony eyes, with yellow tinge slera are looking at me curiously and shyly from many a face with bony outlines of frontal bossing (enlarge frontal bones) and some with enlarged mandibles and puffy eyelids as they lined up on the bench awaiting the sickle cell clinic. I am reminded of my Kenny when he was younger, the characteristic features and complications of sickle cell plaguing him with severe hip pain. I still look at his eyes every time I see him and if the sclera is yellow I become the nagging mom...drink more water! Hydration is key to the prevention of sickle cell crisis. So, as these kids sit on the bench awaiting the doctors, I dole out cups of water and folic acid...and silently pray for their health and well being, remembering the health and blessings Kenny has recieved. It brings back many memories of my first trip in 2003 and Kenny's arrival to America in 2004 for his hip operations and healthcare!

100's of children born with sickle cell disease and their families look forward to this clinic every year. Villages far and wide are mobilized as Tender Mercies partners with the Sickle Cell Association of Uganda. Two doctors, nurses, social workers, counselors and educators come from Kampala each year to conduct this outreach for children and families who would have otherwise not had the opportunity for healthcare and education. In 2006, this sickle cell education began humbly with me and a few ugandans, then a combined team from the US with some medical providers and nurses and subsequently for the last few years, generously provided through a grant from the Sisters of Charity of Leavenworth Kansas via Sr. Mary V. It is a huge blessing and wonderful community outreach. Now that Tender Mercies has a nurse, the sickle cell association has agreed to train her and the opportunity is there for sickle cell children to come for care in this region with the doctor's back up. I am charge with helping set this up. I am truly humbled...and in awe...these children suffer so so much....

Nadine